Meals in bed |
Life is like being on the run from an anonymous Bounty
Hunter. If my family medical history’s a good predictor, my own Bounty Hunter’ll be chasing me into my eighth or
ninth decade.
I can’t see myself as a sweet old lady, taking all my meals in bed. Not exactly the sit-on-my-duff sort of person. Most likely my carers’ll help old Bounty Hunter take me away.
I can’t see myself as a sweet old lady, taking all my meals in bed. Not exactly the sit-on-my-duff sort of person. Most likely my carers’ll help old Bounty Hunter take me away.
So when I got sick, my patience surprised me. Surprised everyone, apparently. Loving son, El Punko said that, since my
symptoms were respiratory, a bit of oxygen deprivation might be helpful at
peace negotiations.
Cheek like that, he’s off my Christmas list, but don’t tell
him. He’s great at gift giving. He got me this really kickass Witch Ball last
year. I’d hate my next Christmas spoiled
just because you can’t keep a secret.
Admittedly, there were less patient moments on the NHS
conveyor belt. The day I stood in the
surgery parking lot screaming, ‘I hate the NHS.
I hate this surgery. I hate all
doctors.’
Probably a daily occurrence for them, now that I think about
it.
But anyway, how a person responds to illness has nothing to
do with what you’re made of. I’m about
as demure as a wet cat, but other than that one hissy fit, I’ve patiently told
my story to a cast of thousands and never once pointed out that none of them
were paying attention or that yes, fatigue is a symptom or that when my heart
danced the Flamenco after taking the prescribed steroids, the cardiology
referral was to cover their over-worked asses.
Or arses, I suppose it should be.
But not because I had a heart problem.
Witch Ball |
Which is why I didn’t go immediately. To the cardiologist. Plus, we were coming up to Christmas –the
Witch Ball Christmas, to be exact – and I’d been referred for 3000 unnecessary
tests as they do when your heart goes biddly boo bee doo deee doo, even if the
reason it did is because you’ve been on steroids.
Mostly I didn’t go because, although I’d been told not
to talk about my fatigue – fatigue isn’t a symptom – I was fecking tired. Not
exactly the behaviour of a wet cat, but I had to choose my battles. So I only went to the respiratory
specialist. Because, you know, my
symptoms were respiratory.
They treated my respiratory symptoms, but I was still tired
(which is not a symptom). My short term
memory took a handbasket to hell (along with several bottles of homemade damson
gin, I suspect). I stopped walking dogs,
pruning trees, writing. I sat out
Samhain and ghost walks, candle services, Yule parties, New Year champagne and
more. I gave up my life but unexpectedly,
didn’t mourn it. Something inside me,
some magical cottage in the dark wood of my psyche felt this was a time of
waiting.
Doodle bed games |
Tired but not sleepy, I knitted like Madame DeFarge. Played bed games with Doodle, discovered how
really awful telly is. Watched Youtube
videos, read blogs and You Won’t Believe What Happened Next web stories I’d not
had time for before. Witnessed twenty-first
century literary wisdom buzzing through reams of Tweets about 99p e-books and
cover launches, how-to-write essays and book reviews,
gradually becoming invisible myself,
not blogging or tweeting or posting on Facebook, not pushing
a manuscript in this or that person’s face,
quiet and patient until I saw it differently, this Writer's Life we'd all been told we had to live. Like editing someone else’s writing. Seeing clearly what’s not plain to the writer
herself. And I thought blasphemy. I thought . . .
That’s not the way I want it done. That’s not the person I want to be. A thought which initially scared me, because any
twenty-first century writer knows what that thought means. If you're not socially aggressive, you commit publishing suicide.
So I let the NHS distract me from scary and blasphemous thoughts. All my tests were negative, and since fatigue
isn’t a symptom, my Bounty Hunter’s name had to be heart disease. And who’s the naughty wet cat who didn’t make
an appointment with the cardiologist?
There’s blasphemous me in the cardiologist’s waiting room, sitting
next to the Bitler who’s convinced I’m in heart failure. Mine is an intuitive soul. This isn’t the end. This is a time of waiting. A threshold.
But I don’t say that because the Bitler’s a woman of science, and she’s
waiting until science has spoken.
That’s when I notice her lipstick’s only on one side of her
mouth. We both laugh for a who-gives-a-shit moment that transcends
science and blasphemy and the expectations of people who won’t ever give you a
Witch Ball. The kind of moment that makes
sense when you’re in it but doesn’t translate into words, yet leaves you knowing
that you have to do what you can live with.
The kind of moment that matters.
A little touch of fatigue. |
The cardiologist says my heart’s fine. In fact, he thinks I’m suffering from fatigue.