Showing posts with label chronic fatigue. Show all posts
Showing posts with label chronic fatigue. Show all posts

Friday, 4 November 2016

Learning To Cook At 60

My mother, who’ll be 93 this month, said life began for her at 60, possibly because her youngest turned 18 that year.  Her mother passed her first driving test at 63, left the home she’d been born in and became a university dorm mother, forming relationships that lasted the rest of her life. 

The world outside my bedroom window.
Me?  On my 60th birthday, I’d been incapacitated for 5 months by an illness I secretly didn’t believe in.  My days had been reduced to watching magpies outside my window chase copulating pigeons away from the view of their own impressionable fledglings.

I used to have plans that didn’t include getting tired every time I took a shower.  At first glance, it seemed everything had been stolen from me.  Gradually, though, it became evident that I was on the same journey I’d always been – i.e. my life – the only difference being that rather than going 70 mph down the freeway, I was now on foot. 

In practical terms, that meant that a few minutes weeding the rose garden followed by a few minutes of lying on my back watching the buzzards and kites scream at each other over sky space, well, eventually that does get the job done. 

Or as a Valentine's Day craft.
One day, lying on my back took the form of plopping down on the couch beside Siobhán who was watching Mary Berry make a chicken pie on TV.  The part where they wove the pie crust reminded me of the woven heart Christmas decorations we made in Appalachia.  I can do that, I decided. 

Later, when Siobhán made her own chicken pie, she couldn’t remember how to weave the crust.  Without consulting anything or anybody who might know better than myself (which would be just about anything or anybody), I took on the job.

When the scientific mind cooks, wine is essential.
Let’s stop here for a life observation.  The scientific mind (that would be Siobhán) interests itself in rules – learning them, repeating them, sticking to them in order to repeat desired results.

The creative mind has an element of oppositional defiance in it that constantly asks, Why?  How can this be better?  Can that be more suited to my liking?  When does the fun come into this?

So when Siobhán tells me that Mary Berry says we need 2 packages of pastry for the crust & we only have one, I decide to go for it, even though I know feckall about cooking and, well, she’s Mary Berry. 

But the creative mind is more than oppositional.  It’s curious.  I wanted to know why

this 

Lora's pre-bake weave.

turned into this.  

A lake has formed.

Re-watching the episode proved the instructions were a little more complicated than my memory of them. 

I watched another episode in the series and thought, oh my . . . what I’ve missed, being surrounded by good cooks all my life.  

Making smoke.
Into the kitchen I go.  And no, I didn’t become scientific.  My mind had its questions.  I substituted what I didn’t have.  I added what I thought I’d like better.  I made a lot of smoke.  And I got to eat as well.  Several times.

The lesson my mother and grandmother passed along from their sixties wasn’t about achieving.  It was about taking a life’s worth of kickass learning and moving forward with as much bravery and foolishness as I did in my twenties, despite whatever shit life has hurled at me.  It’s about recognising that the ability to experience something, to experience anything really, well that’s just about two shades past precious.  It’s not a Pollyanna, look on the bright side, never get what you want but be grateful approach.  It’s accepting reality in its ugly and miraculous because that's what being alive is, then seeing what the fuck this next thing’s all about.  In other words, while it’s not 70 mph, keep moving and you’ll meet things.

Going it on foot.
If I hadn’t gotten sick, I’d probably find as much depth in my life as I do now because that's what creative minds do.  Most likely, though, I’d not stop weeding the roses to watch the buzzards and kites.  And I certainly wouldn’t take the time to learn to cook.  But I did, so I am.  It ain’t heroic.  Cooking’s not life changing (unless it’s fatal, which in my case, is possible.)  But I am.  I’m going to learn how to cook at 60. 



Tuesday, 26 January 2016

Bounty Hunter Awaits

Meals in bed
Life is like being on the run from an anonymous Bounty Hunter.  If my family medical history’s a good predictor, my own Bounty Hunter’ll be chasing me into my eighth or ninth decade.

I can’t see myself as a sweet old lady, taking all my meals in bed.  Not exactly the sit-on-my-duff sort of person.  Most likely my carers’ll help old Bounty Hunter take me away.

So when I got sick, my patience surprised me.   Surprised everyone, apparently.  Loving son, El Punko said that, since my symptoms were respiratory, a bit of oxygen deprivation might be helpful at peace negotiations.

Cheek like that, he’s off my Christmas list, but don’t tell him.  He’s great at gift giving.  He got me this really kickass Witch Ball last year.  I’d hate my next Christmas spoiled just because you can’t keep a secret.

Admittedly, there were less patient moments on the NHS conveyor belt.  The day I stood in the surgery parking lot screaming, ‘I hate the NHS.  I hate this surgery.  I hate all doctors.’ 

Probably a daily occurrence for them, now that I think about it.

But anyway, how a person responds to illness has nothing to do with what you’re made of.  I’m about as demure as a wet cat, but other than that one hissy fit, I’ve patiently told my story to a cast of thousands and never once pointed out that none of them were paying attention or that yes, fatigue is a symptom or that when my heart danced the Flamenco after taking the prescribed steroids, the cardiology referral was to cover their over-worked asses.  Or arses, I suppose it should be.  But not because I had a heart problem.

Witch Ball
Which is why I didn’t go immediately.  To the cardiologist.  Plus, we were coming up to Christmas –the Witch Ball Christmas, to be exact – and I’d been referred for 3000 unnecessary tests as they do when your heart goes biddly boo bee doo deee doo, even if the reason it did is because you’ve been on steroids. 

Mostly I didn’t go because, although I’d been told not to talk about my fatigue – fatigue isn’t a symptom – I was fecking tired. Not exactly the behaviour of a wet cat, but I had to choose my battles.  So I only went to the respiratory specialist.  Because, you know, my symptoms were respiratory.

They treated my respiratory symptoms, but I was still tired (which is not a symptom).  My short term memory took a handbasket to hell (along with several bottles of homemade damson gin, I suspect).  I stopped walking dogs, pruning trees, writing.  I sat out Samhain and ghost walks, candle services, Yule parties, New Year champagne and more.  I gave up my life but unexpectedly, didn’t mourn it.  Something inside me, some magical cottage in the dark wood of my psyche felt this was a time of waiting.

Doodle bed games
Tired but not sleepy, I knitted like Madame DeFarge.  Played bed games with Doodle, discovered how really awful telly is.  Watched Youtube videos, read blogs and You Won’t Believe What Happened Next web stories I’d not had time for before.  Witnessed twenty-first century literary wisdom buzzing through reams of Tweets about 99p e-books and cover launches, how-to-write essays and book reviews,

gradually becoming invisible myself,

not blogging or tweeting or posting on Facebook, not pushing a manuscript in this or that person’s face,

quiet and patient until I saw it differently, this Writer's Life we'd all been told we had to live.  Like editing someone else’s writing.  Seeing clearly what’s not plain to the writer herself.  And I thought blasphemy.  I thought . . .

That’s not the way I want it done.  That’s not the person I want to be.  A thought which initially scared me, because any twenty-first century writer knows what that thought means.  If you're not socially aggressive, you commit publishing suicide.

So I let the NHS distract me from scary and blasphemous thoughts.  All my tests were negative, and since fatigue isn’t a symptom, my Bounty Hunter’s name had to be heart disease.  And who’s the naughty wet cat who didn’t make an appointment with the cardiologist?

There’s blasphemous me in the cardiologist’s waiting room, sitting next to the Bitler who’s convinced I’m in heart failure.  Mine is an intuitive soul.  This isn’t the end.  This is a time of waiting.  A threshold.  But I don’t say that because the Bitler’s a woman of science, and she’s waiting until science has spoken.

That’s when I notice her lipstick’s only on one side of her mouth.  We both laugh for a who-gives-a-shit moment that transcends science and blasphemy and the expectations of people who won’t ever give you a Witch Ball.  The kind of moment that makes sense when you’re in it but doesn’t translate into words, yet leaves you knowing that you have to do what you can live with.  The kind of moment that matters.


A little touch of fatigue.




The cardiologist says my heart’s fine.  In fact, he thinks I’m suffering from fatigue.